[quote author="centralcoastobserver" date=1251025378]I'm a RN with more years of experience than I really want to recall, and also the personal experience of caring for my mom in her last years, complicated by dementia. So, from both professional and personal experience:
Have the tough conversation(s) before you really need them. How does your dad/mom (or whoever...) feel about dying? Would they want to try every possible means to keep going, even if it meant days/weeks/months in a facility dependent on technology? If they say "yes" then fine, you know what they want, and can facilitate that. If, however, they say "no" - that it's more important to them to have some ability to make choices and don't want to be dependent on technology, then you'll know that, and be able to facilitate those types of decisions.
Unlike TV and the movies, there are rarely simple "black and white" choices. And technology, these days, comes in all sorts of forms. Most people are pretty clear on the complexities involved in accepting or declining to be placed on a ventilator, for example. But what about "simple" surgery? I've had situations where elderly people (80 years or older) have had a colon mass. The patient doesn't really want surgery, and the resultant colostomy, but the children feel that mom shouldn't "give up" yet, and push for the surgery. The result is that the surgery is sucessful, but the patient can't manage the colostomy care independently, the children don't want to learn or are too far away, and mom ends up in a skilled nursing facility, which she never wanted in the first place.
Once you have those tough conversations, and you believe you understand what your mom or dad wants, then get medical POA (financial as well, if they will agree...) and keep the forms handy. You'll need to fax them to physicians and hospitals to prove your right to obtaining medical information and making decisions if your mom/dad can't.
If you don't live close enough to your parents to check on them frequently, consider hiring a nurse case manager, or a geriatric case manager. They will meet with your parents, make a baseline assessment of their abilities and needs, and check with them periodically to make sure that the situation is still "ok." Nurse case managers have a slightly more "medical" perspective, and geriatric case managers tend to be social workers, so they have a slightly different perspective, but either can be very helpful. You can decide based on your parents history.... if they have a number of chronic medical issues, such as diabetes, heart disease, kidney disease, my bias would be towards a nurse case manager. If it's more a case of needing household assistance, the social worker model might be best. You can find referrals to such case managers thru most counties "Office on Aging" or similar agencies. Once a case manager is involved, they can find the best providers of additional services if needed.</blockquote>
I just want to make sure that everyone that has concerns about their parent(s) or grandparent(s) saw this thoughtful reply. Heeding this can potentially mitigate big tragedies and also keep you from would have, could have, should have moments later on that can haunt you.